8 years cancer free and counting. Here's the truth of it: It's going to SUCK. There's no sugar-coating it. There's no way around it. You're getting poison injected into you and hoping that it only kills the bad stuff. The hospital I was treated at has a world-renowned children's hospital, so, thankfully, the children who were fighting cancer were in a separate building. I would've lost it had I had to see kids fighting alongside me every day. It's a horrible disease, and no child deserves to go through all that. It's incredibly disheartening to think about.
That said, I kept focusing on getting through it. I recognized a lot of people had it far worse than me. My cancer was in a muscle. So, radiation wasn't as bad as it would've been for, say, a brain tumor. Surgery was somewhat painful, but that part of the body can take a beating so it wasn't as bad as it could've been. I tried my best to remain thankful that it wasn't as bad as it could've been.
I mapped out my treatment weeks on a calendar so I could see progress and how much closer I was getting to being done. I focused on my kids and staying strong for them. It was extremely hard on them, so pretending to be positive made it easier on them, which in turn made it easier on me. Lastly, I set a goal. Something to look forward to when everything was DONE. When I told the kids I was sick they, of course, lost it. When everyone stopped crying I said that I think we'd need a big vacation after treatment was over. We settled on Disney World. Talking through it with them and saying, "When this is over..." helped a lot. When we finally did go you could see everyone in the family visibly relax because psychologically the fact that we were there meant things were DONE.
Given the high survival rate for testicular cancer, it's easy to feel a bit guilty in the the chemo ward. Yes, most people there are going to be going through a tougher battle, but to offset that, you're going to feel like crap as well. Cisplatin in particular (the "P" in BEP) has a reputation for causing nausea and vomiting :-) As my oncologist told me beforehand, "it's not going to be a walk in the park".
So, you need to be concentrating on looking after yourself during the treatment. Make sure you drink tons of fluid, and try to exercise every day. You still need to eat, so try to find some things that you like - now is not the time to stick to your diet! You'll also need to watch out for infections and maintain a high degree of cleanliness during your treatment. Maintaining a positive mindset is really important too. Keep your mind busy when you can, and sleep when you need to.
Somewhat surprisingly, my overall experience was somewhat positive (this was my first experience of any serious medical issues). The staff and nurses in the chemo ward were super kind and supportive. Conversations with other patients were usually surprisingly positive.
How old are you? Have you been exposed to serious illness or death before?
This is my world at the moment (terminal melanoma and no more treatment options left after 2 years of immunotherapy). What you’re seeing is not human suffering but human survival, and it’s an absolutely beautiful thing.
That 6 year old has been through more and knows more about strength and life than you do. Learn from him, from all of them. What they are low on is hope and joy, bring it and share it with them. Leave your pity and unease at home
Consider it a opportunity to learn from other people going through their own struggles and try your best to make the time they spend with you a highlight of their day.
What are you most anxious about? The chemo or the cancer? I ask because it seems strange to hyper focus on one thing, and often its a result of anxiety. It would be good to tackle your anxieties, just to be safe.
Yes the oncology ward is quite sad, I spent 3 months in one and it's really one of the most tragic places to be.
That being said, most people are helped by chemo, so I found it easy to stay positive about outcomes, especially for a 6 year old.
I distracted myself on my laptop, watched a lot of YouTube (Thanks WAN show for a bazillion episodes).
8 years cancer free and counting. Here's the truth of it: It's going to SUCK. There's no sugar-coating it. There's no way around it. You're getting poison injected into you and hoping that it only kills the bad stuff. The hospital I was treated at has a world-renowned children's hospital, so, thankfully, the children who were fighting cancer were in a separate building. I would've lost it had I had to see kids fighting alongside me every day. It's a horrible disease, and no child deserves to go through all that. It's incredibly disheartening to think about.
That said, I kept focusing on getting through it. I recognized a lot of people had it far worse than me. My cancer was in a muscle. So, radiation wasn't as bad as it would've been for, say, a brain tumor. Surgery was somewhat painful, but that part of the body can take a beating so it wasn't as bad as it could've been. I tried my best to remain thankful that it wasn't as bad as it could've been.
I mapped out my treatment weeks on a calendar so I could see progress and how much closer I was getting to being done. I focused on my kids and staying strong for them. It was extremely hard on them, so pretending to be positive made it easier on them, which in turn made it easier on me. Lastly, I set a goal. Something to look forward to when everything was DONE. When I told the kids I was sick they, of course, lost it. When everyone stopped crying I said that I think we'd need a big vacation after treatment was over. We settled on Disney World. Talking through it with them and saying, "When this is over..." helped a lot. When we finally did go you could see everyone in the family visibly relax because psychologically the fact that we were there meant things were DONE.
Best of luck to you. Stay strong. Get healthy.
Hi (2xBEP adjuvant, about 8 years ago),
Given the high survival rate for testicular cancer, it's easy to feel a bit guilty in the the chemo ward. Yes, most people there are going to be going through a tougher battle, but to offset that, you're going to feel like crap as well. Cisplatin in particular (the "P" in BEP) has a reputation for causing nausea and vomiting :-) As my oncologist told me beforehand, "it's not going to be a walk in the park".
So, you need to be concentrating on looking after yourself during the treatment. Make sure you drink tons of fluid, and try to exercise every day. You still need to eat, so try to find some things that you like - now is not the time to stick to your diet! You'll also need to watch out for infections and maintain a high degree of cleanliness during your treatment. Maintaining a positive mindset is really important too. Keep your mind busy when you can, and sleep when you need to.
Somewhat surprisingly, my overall experience was somewhat positive (this was my first experience of any serious medical issues). The staff and nurses in the chemo ward were super kind and supportive. Conversations with other patients were usually surprisingly positive.
Anyway, good luck with your treatment!
How old are you? Have you been exposed to serious illness or death before?
This is my world at the moment (terminal melanoma and no more treatment options left after 2 years of immunotherapy). What you’re seeing is not human suffering but human survival, and it’s an absolutely beautiful thing.
It will be OK :)
That 6 year old has been through more and knows more about strength and life than you do. Learn from him, from all of them. What they are low on is hope and joy, bring it and share it with them. Leave your pity and unease at home
This right here.
Consider it a opportunity to learn from other people going through their own struggles and try your best to make the time they spend with you a highlight of their day.
Hey there, 9 year survivor here (4x BEP).
What are you most anxious about? The chemo or the cancer? I ask because it seems strange to hyper focus on one thing, and often its a result of anxiety. It would be good to tackle your anxieties, just to be safe.
Yes the oncology ward is quite sad, I spent 3 months in one and it's really one of the most tragic places to be.
That being said, most people are helped by chemo, so I found it easy to stay positive about outcomes, especially for a 6 year old.
I distracted myself on my laptop, watched a lot of YouTube (Thanks WAN show for a bazillion episodes).
I am anxious about seeing others suffer. I am afraid what I'm going to see will haunt me afterwards.
I don't have anything useful to suggest, but please remember to post here an update a few days after the treatment. Fingers crossed.